Showing posts with label SSRIs. Show all posts
Showing posts with label SSRIs. Show all posts

Thursday, August 4, 2016

Withdrawal: an essay.

I had put aside Surviving Psych Med ​Changes and/or Withdrawal: an essay & guidebook for creative minds to read at a later time (today!). The piece, by Luke B. Goebel stuck out for me, since I have intense dis-associative symptoms when I don't take my medication. I didn't take it for a few days once due to forgetting it while on a weekend away and it was brutal. I had to ask my mom to drive since I was hearing "brain zaps" and couldn't focus. It was something I do not want to re-live.

I recommend reading his piece in its entirety. Writing, when you feel insane seems impossible. Trying to properly express the entirety of how you feel when you're manic or down is hard enough, but the experience of being in some kind of fit is so fragmented that the parts of us that are able to use language are often partially disabled. There's also trying to organise the madness of it all. It seems like a cliché to put it that way, but things that one day came and went through you become absolute certainties you fixate on, to your own detriment. So much of who you are seeps out, and so much of something darker takes its place.

Goebel:
So much of it is living without a healed self, without a celebrated empowered identity or persona as an author or person sharing how they healed. I agonize that I am not a packageable brand of salvation I can sell, a story line of resurrection and overcoming of challenges. A Ted Talk. No, I’m still trying to crystalize meaning. I’m still wild. I’m still healing this sometimes hard-to-handle self. And so are the authors I’ve mentioned, many of them, and yet they have their story sorted. I don’t need that to be resolved today. I need my medication to straighten out. But in this state, everything swirls together into madness.
It's a difficult place to come to and to accept: there is no downhill, it's all uphill. There is no snap back into place, you'll have scars, that part of you will never go back to how it was before. You might have some good days, but you'll never be better. In Goebel's case as a writer, I can see what he's facing. I adored Lidia Yuknavitch's memoir The Chronology of Water. I felt she wrote it to me. It floored me. But in all the memoirs I've read by the mentally ill / on mental health, so many ended with a "and I'm better now" ending. It isn't the norm. Or is it? Am I part of the statistic that's forever afflicted?  Regardless, the completion of a narrative in art is a false god.

What is having a sorted story? Maybe Goebel is talking about it as a narrative, about a story with a clear arc. I know for me, I had this sense that eventually I'd get my shit together and eventually life would be easier. But that's not where I'm at. My realisation is that no, things just evolve into something else. I have the language now, I have some tools, but the struggle is still omnipresent. 

I may not be actively suicidal, but I am always fucking worrying about job security now. Always worried about being able to afford myself, afford a life. I'm tired. It's been uphill and the slope is unforgiving. I am now piecing together what it is I do have, and trying to focus on what it is I do want. How do you learn to live a life within a "normal" set of societal set of rules when there are days of your life you vividly remember wanting nothing more than to burn it all down.

This bit, ooooof:
He didn’t seem interested in my crashing. He gave me a prescription to add to the stack: Neurontin. He told me I might want to decide to get back on my medication at full strength. (It was left up to me!) Every doctor and shrink I have talked to since say it is insane to cut Desipramine in half as a starting point to weaning off the drug. Not insane—dangerous. Extremely dangerous. I smelled burning plastic that wasn’t there. I wept. I felt panic. Every day lasted and lasted for what felt like weeks.
It is beyond me, how we're asked to make life-altering, DANGEROUS decisions while possibly manic or going through some kind of panic or psychosis. WHY DOES IT TAKE THE MENTALLY ILL OF US TO POINT OUT HOW THAT MAKES NO FUCKING SENSE. I've documented my own experiences in accessing care, and time and time again I've been dumbstruck by how often we're left to our own devices. 

Read Goebel's piece. 

Tuesday, November 24, 2015

On "brain zaps."

Man oh man.

baby confused upset funny face pooping

So, turns out I'm not the only one.

When the Antidepressants Are Worse Than the Depression over on Motherboard, written by Martha Stortz just spoke directly to me.

Last year I went away for a few days with family, and I forgot my SSRI (Effexor). Well, by the 2nd day I wasn't feeling great, and by the 4th I was hearing "zapping noises" in my ear canal/brain, and felt totally dissociated from the physical world. I ended up having to have my mother drive home because I didn't feel able to drive. I got home and took a pill and went to bed, to try and shut down my brain while the drugs made their way back into me.

Stortz discusses her experiencing weaning off of her SSRI similarly (though I did it 
cold-turkey/unintentionally):
Every day after the first step down was a struggle to get out of bed. I was often nauseated and I suffered from constant “brain zaps” whenever I moved my head, a phenomenon described by people withdrawing from SSRIs as an electric buzz or a shock. I couldn’t pay attention at work and cancelled any social interaction in favour of sleeping. It was almost like being depressed again but worse, because short of going back on the antidepressants and delaying the inevitable, there was nothing I could do to control the withdrawal symptoms.
Referred to as SDS (SSRI Discontinuation Syndrome) Stortz refers to an Italian/American study that shows SSRI withdrawal is worse that initially assumed.
The review showed that SDS can happen regardless of the type of SSRI. Furthermore,
gradually weaning off the drug doesn’t diminish the chances of discontinuation syndrome. Symptoms, which include nausea, rapid heart rate, and hallucinations, usually last a few weeks but can persist up to a year.
... 
I wish there had been more dialogue surrounding SSRI withdrawal so I had known what to expect, however. At no time did the doctor who put me on the SSRI discuss possible withdrawal symptoms, nor did the doctor who took me off the SSRI. Without that full disclosure, I was totally blindsided by the withdrawal symptoms, the severity of which is potentially dangerous for a person with previous mental health issues. If I didn’t have such a strong support system and even stronger Google skills to figure out what was going on, I would have likely assumed SDS was just what real life was like after SSRIs and either resumed SSRIs indefinitely or fallen back into my old withdrawn, anhedonic habits.
Seriously though. You hear "zapping." That isn't a reassuring experience for someone dealing with their mental health.


"Oh, so I legit hear things now."

What a fun step forward!

The "zapping" ended when I started taking my meds again. Since then my dosage has actually gone up, and I'm feeling better depression wise, I'm more functional. But, if I forget a dossage, I do feel SDS pretty quickly. And there's so little known about the withdrawal of SSRIs, and the long-term effects, it isn't very comforting. It's a risk. The alternative is, non-functional.

It's assumed dealing with depression is more important than the possible outcome of long-terms SSRI use. I hope to shit they're right in that assumption.